Indian Association of Muscular Dystrophy (IAMD) is working since 1992 to provide relief and rehabilitation to the people afflicted with Muscular Dystrophy (MD) in India and also to create public awareness. IAMD has been working on a multi-pronged strategy to help mitigate the sufferings of these victims at four different levels: First, direct contact program through helpline-telephone, newsletters and circulars; second, feeling of united in brotherhood and renewing confidence in patients; third, specific need orientation program providing wheelchairs, gadgets and financial aid to patients, and fourth, to establish proper diagnostic facilities and workshops for doctors.
IDRF Partner Since: 2015
Focus Area: Health
Location: Himachal Pradesh
Project Title: Integrated Muscular Dystrophy Rehabilitation Centre -Manav Mandir
IAMD is coming up with an Apex Centre at Solan, for complete care management, tests, and diagnosis, rehabilitation, orientation, rejuvenation, research and all therapies for the muscular dystrophy patients. After hearing about this rehabilitation center called “Manav Mandir” that will provide a wide range of services required to the patients under one roof, the Government of Himachal Pradesh took a proactive stance towards setting-up a central facility for dealing with muscular dystrophy, by providing 20,900 square feet of land to IAMD on a very nominal lease in 2009.
IDRF has collaborated with a Texas-based NRI in supporting the construction of this building which is almost 75% complete. This building is earthquake resistant and incorporates many features of a “Green Building”. This will reduce environmental impacts by using less energy, water, and natural gas, provide rainwater harvesting and use solar panels to reduce power consumption.
This center will not only be a first rate institution for treating muscular dystrophy patients, but also provide guidance and understanding of the disease to the patients and their families and, help them to find courage and strength to uplift themselves mentally, emotionally and physically in order to lead a more normal life.
Please click on the link to learn more about the various services provided by Indian Association of Muscular Dystrophy